Posts Tagged ‘autoimmune disease’

I’ve been working harder, lately.

I’ve been working on my health. Making myself walk every morning until it’s become less of a forcing myself thing and more of a treat I look forward to. I have that time to myself to step away from everything negative. If I want to spend the time brainstorming, I can. If I want to spend it playing Wizards Unite, I can. If I want to listen to the NoSleep Podcast or Bat Force Radio, I do. It’s my time I give myself.

I’ve also been working on eating better. Things better for my body. Better portion sizes. Etc.

But the hard work isn’t just in my health.

I’ve been working on my blog, Wandering NerdGirl.

I’ve been writing reviews and travel posts. I’ve been planning new adventures and ways to make the blog grow. I’ve been getting out and trying new things. The productivity has been great for my mental health.

And on top of THAT, I started a YouTube channel. For travel, nerd things, collecting, etc. Here’s some links:

Harley Quinn Plushie Collection

Harley Quinn shelves

Batman Collection Room

Rocky Horror Picture Show Festival

First Fridays: Star Trek

GameXPloration

Doctor Who TARDIS shelf storage.

It’s been a scary thing to start, but I’m hoping it grows into something wonderful in time.

And, best of all, I’m writing in general, again. It isn’t the best. It isn’t as fast or often as I used to. But I’m working on it.

I’m working harder, guys.

And I’m happy to be getting myself back.

-Angel

makenicethingsI could easily admit Sjogren’s Syndrome when I was diagnosed. I was scared, but I could easily say that yes, I have it. And Fibromyalgia didn’t scare or surprise me, mainly just irritates me.
The new specialist I’ve been seeing about my ovaries diagnosed me with Polycystic Ovarian Syndrome. It’s not something I scream from the rooftop, but I can still admit it.
But I can’t deny the one disease, of all diseases, I have dreaded being told I have. Because Thursday, it snuck up on me, in blood work I never imagined it appearing on. Diabetes.
Mind you, I have not been a diabetic. I have my blood drawn and checked a bizarre amount. I just had it checked right before my dental stuff. But there it was, plain as day, looking back at me. And when the nephrologist that had drawn the labs called me, I hoped he would say it was a fluke. But nope. It’s all mine. A new diagnosis.
And I don’t like it.
I literally fought the diagnosis, denying that it could honestly be happening. But today, I can’t deny it anymore. I started to feel horrible at work, and sure enough, when we checked my blood sugar, it was elevated. Very elevated.
The best guess anyone has as to why I have had normal blood sugars, and now not normal blood sugars, is a combination of horrible genes and my last steroid treatment being such a high dose so many times a day, that it pretty much caused a steroid induced diabetes.
Basically: The medicine to help the rest of me not be sick, woke up another sickness. (Which, I must say, is bullshit. Stupid body.)

But, why am I throwing all this out there? Because I am ashamed. And I shouldn’t be. I don’t want to be. I’m posting this because I need love and support to get me through it, and I won’t have any of that if I pretend I don’t have it.

Diabetes is a disease that, in both Type 1 and Type 2, is frequently misconstrued by the media and society in general as something to be embarrassed of. People suddenly think it gives them a license to be an asshole to you, because you obviously “did it to yourself.”

Diabetes is an autoimmune disease. So, why don’t I want to treat it like Sjogren’s, where I can just as easily say that I have Diabetes as I do with Sjogrens?

I don’t want to perpetuate this idea that I need to be ashamed.

And I am going to fight like hell to turn this mess around, not so people don’t judge me: but so that I can live this fabulous, adventurous life I have dreamed of.

 

~Angel

Well, 2014 has apparently been the year of random health stuff happening. I’m not even sure where to start…

zim
Let’s just begin with the time before I went to Orlando, in a brief summary:

+ Rheumatologist was freaking out about my kidneys, and said I needed to see a nephrologist ASAP. And considering 1.) My father and his twin both died with kidney problems and 2.) even if I didn’t have a family history, my disease can damage my organs, including my kidneys. So this has been a giant scary red flag of dread.

+ My liver is also not behaving as it should be.

+ My thyroid and lymph nodes are also not my friends right now. So, more tests there.

+ Basically my body hates me.

Since I’ve gotten back:

+ I’m set up for a pre-surgery consult for my ovarian mass on November 10th. Finally getting rid of that sucker.

+ Thursday was a bunch of dental procedure stuff. And since I have an autoimmune disorder that likes to focus on my mouth, and the work needed to be done to not let that get worse, but the procedure itself causes problems… Let’s just say I’m not having the best recovery ever.

+ The specialist for my kidneys was not a fun day. Blood work and tests and just bad news. My kidney function seems to be fine, but there is still damage being done. A considerable amount considering my family and personal history. I follow up with that doctor November 6th. And he’s already told me he wants a kidney biopsy done, which will not be a fun time I’m sure.

I’m sure there are 8 billion other things that I can’t think of right now, because the brain fog is so intense right now, I feel like I’m never going to crawl out of it. But I figure everyone deserves an update on how my health misadventures are going.

Hopefully I can get my head clear in time to start NaNoWriMo this weekend, and make an attempt to enjoy my favorite holiday – Halloween.

 

~Angel

Part One – Angel Young: The Dark Inside

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Part Two – Angel Young: Moments of Light

 

Go check them out! We discuss quite a bit!