Archive for January, 2016

bowie

“I know I’ll wither, so peel away the bark
Because nothing grows when it is dark
In spite of all my fears, I can see it all so clear”

So within a week, I’ve had some health ups and downs.

Last Monday, I had my follow up for my biopsy. Good news! It showed no cancer! I have other issues to tackle with why I had to have the biopsy, but at least cancer is currently off the table.

This Monday, I found out I have Trigeminal Neuralgia.

I had a very BAD end of last week, and then HORRIBLE weekend, and by Monday I knew I needed to see my doctor. I wasn’t sleeping (and am still not sleeping) because of how intense the pain is. To give you an idea of the pain levels: this disease is nicknamed the Suicide Disease, because people would kill themselves from the pain before anyone figured out what to do to treat this pain. It was hard to describe, but I read where someone described it as a combination of the worst migraine of your life and the worst toothache. I can agree and elaborate on this: The misery of the worst migraine, the insanity you feel with the worst toothache, and the feeling of someone using a hammer to break your jaw. That. That sounds like an adequate description.

I’ve built up a decent pain tolerance over the years, somehow. And this shatters that tolerance and leaves me curled up and miserable.

And, you guessed it – this is a manifestation of my disease. Sjogren’s decided to welcome more unpleasantness into my life.

But here’s the thing… Obviously, it hurts and it sucks. Yet, what seems to be bothering me even more, is that this is disease progression. This is me still not having anything under control. And it’s just a reminder of what my doctors have said:

There is nothing we can do to stop the progression.

You’re a ticking time bomb just waiting to go off.

I’ve had to explain to everyone in my life time and time again that I’ve been wanting to travel and do so much these past few years, because I want to do it while I can. There may come a day that I can’t handle my go-go-go travel style. What’s worse now, though, is that this day may be coming a lot sooner than I anticipated. My last three trips, I’ve had something come up health wise. Obviously, Reno was the worst. This all scares me.

I know my disease is still young and still evolving, but it’s so strong so early on. I can’t imagine what full-force will be like.

It’ll be a fun follow-up with my Rheumatologist, I’m sure.

But, I won’t let this stop me. I have plans, and goals, and dreams. Despite the brain fog, I will write. Despite the pain, I will progress. Despite exhaustion, I will travel. Until it is absolutely impossible, I will continue. Even though it feels like I am withering, I won’t give up. It isn’t in my nature.

Hopefully soon I’ll have more updates that don’t involve my body being stupid.

Hopefully.

~Angel

light

I’m not a single bit surprised that 2016 is off to a rough start. It’s almost a tradition at this point: go into it hopeful, get knocked down so fast my head spins. Because by “rough start”, I mean that it has been made very clear to me that this coming year will make or break me. And I refuse to let it break me, no matter how hard everything is trying to. All good news fades. All steps forward seem like they haven’t mattered. I am no closer to anything than I was before. If anything, I’ve fallen back several steps.

But, I push forward:

+ I’m working hard at my Wandering NerdGirl blog, in hopes that my nerdy adventures can be more productive. Cons, Orlando, other nerd-tastic events… I’m on it.

+ I’m writing again, period. I was so down and depressed Tuesday, reading about the market and what agents and publishers don’t want right now, blah blah. I’m a very critical person on myself, so of course I instantly decide everything I write is garbage and I should give up. But for some reason, one of my favorite story ideas popped into my brain, and I had a lot of interesting new ideas for it. Since it hasn’t actually been written yet, it will be a good exercise in writing again. I’ve spent so long in editing and rewriting hell, I haven’t had much time or opportunity for new creation. I’ve mostly been jotting notes down and what not, or writing a few specific scenes that some to mind. But as soon as I get my thoughts together, I’m running with it. I’ll hammer out my first draft, as intimidating as that feels right now. I won’t lose my dream. I’m going to write this book for me, and see where that takes me.

+ I have been drawing. Well, the last day or two I haven’t been. But I will excuse that because I have started a huge, new painting of Poe Dameron’s helmet from Star Wars: The Force Awakens. It’s all pretty exciting, considering I was very close to just getting rid of a lot of my art stuff to save space.

+ I have my eyes on new projects. Bigger projects. More projects. I have plans to go beyond what I have done and make something new all the time. New shoots, new types of projects, new ideas. It’s all very vague to you guys right now because I’m not jumping in with both feet just yet, so there isn’t much information to share. Just cross your fingers that I make the time to pull it all off.

+ My collection is growing. My collection is a tiny beast, but it is my tiny beast. I know I’ve been slacking on the Collection Haul posts, and if you’d like to see them again, I could start back up this month or in February. There have been quite a few additions. And as stupid or trivial or whatever it sounds, one of my goals for the year is to really build my collection up. I take great pride in my Batman stuff. Someday I’ll have a massive assortment of various Batman items properly displayed.  For now, it steadily grows.

+ I’ve been trying to figure out how to get back to college, and exactly what I want to do when I get back. I was going to start again Fall 2015 but my financial aid decided to be complicated. So maybe Fall 2016 or Spring 2017. Who knows. Going back genuinely frightens me at this point. But I would still like to try.

 

So, you have a basic rundown of my game plan for the year. Obviously, subject to change. But hopefully, this year I rise from the ashes and become closer to where I was before.

 

~Angel