Posts Tagged ‘rheumatology’

We’ve been playing a game of “What the hell is wrong with me?” for about a year and a half. And now, we finally have some names to throw out there:ImagineSjogrens

Last appointment, I was diagnosed with fibromyalgia. We discussed the possibility that Lupus is developing. Today I was diagnosed with early stage Sjogren’s.

This is a disease that usually hits menopause age women and older, though it can hit someone my age. It’s just pretty rare. So, if and when I ever have children, I’ll need a high risk OB.

There are ways of managing Sjogren’s to make it more comfortable, but there are no medications specifically for it and no cure. I’m also at risk of serious complications, the big one being Lymphoma. So I have to be on high alert for those symptoms. And Sjogren’s can play brother and sister with Lupus, so we’re predicting that is in the process of possibly developing as well.

Mostly, I’m just dumbfounded that there’s not just ONE name for what’s wrong with me. There’s a few. The biggest relief is that I’m NOT CRAZY. I have proof of something being wrong with me. Something that can be explained.

Now, to just plan how to make these life alterations so I can cope a bit better.

More later,

Angel.

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So, some of you may already be aware of the fact I had my very first rheumatology appointment on Tuesday. I’ve been so worn out, Ipromise haven’t had the chance to update you. To sum it up fairly simply:

Lots and lots of tests. Twenty tubes of blood drawn. Trying to rule out lots of things: fibromyalgia, Chronic Fatigue, Lupus, horrible “c” word which shall not be named, etc. So far, from the lab work I’ve seen and my regular doctor looked at, I’m coming up positive for some sort of connective tissue disease. But what I’m going to end up with as a diagnoses is really up in the air still. I have a follow-up the 26th to go over my labs and see what the next steps will be, or if she has any answers for me.

And while I’m scared to death it’s going to be something life-altering, no cure, or fatal – I am very relieved about something: I’m not crazy. Well, not about this (ha.)

I have PROOF of something being wrong with these test results. There is something here that shows I’m not lying, and it isn’t all in my head. The Mysterious Sickness of Doom may have a NAME. You have no idea the relief that brings me.

Only now I have to keep from worrying myself to death that it’s something that’ll take me out sooner rather than later.

In other news, I’m slowly but surely getting through the revisions on my WIP. My Beta reader is keeping me motivated by taking on a chapter at a time, and I have to keep up by getting these chapters ready. So far, so good. And really, I’ve been needing this outlet to make me relax with the large amount of stress hitting me in the face. Keep Calm and Write Something. It’s that simple.

Anyway, I’m off. Much to do.

~Angel